Founder - Chair
Teresa was diagnosed with Legopenic Primary Progressive Aphasia in 2010. Prior to being diagnosed Teresa was employed as a RN clinical care manager for a managed care company. Teresa lives in Phoenix Arizona and spends much of her time advocating for those living with FTD.
Bob was diagnosed in 2006 with dementia which was later refined to behavioral variant FrontoTemporal Dementia (BvFTD) in 2007. Bob lives in Des Moines, Iowa with his wife of 46+ years, Kathryn Stangl. The Meddaughs have two adult daughters living in Pennsylvania. Before FTD, Bob worked as a journalist, communication consultant and database designer. Bob stopped working in 2001 when he kept forgetting what he was working on. Unfortunately, it took until 2006 for Bob to get diagnosed.
Prior to her diagnosis of BvFTD, Anne was a registered nurse with a certification in wound care. Anne was 48 years old when she was diagnosed Now more than 12 years later Anne has reinvented herself in advocating, volunteering and book writing. Anne resides in California with her husband Ed of 35 years. They have twin boys who are both successful emergency room physicians.